For the past six years, Whitney Dafoe has been confined to a bedroom in the back of his parents’ home, unable to walk, eat or speak. His diagnosis? The mysterious disease myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) which affects 20 million people around the world who largely suffer in silence because the condition is little known and much misunderstood.

Waiting for Superman follows Whitney’s father, groundbreaking geneticist Ron Davis, as he uncovers new possibilities for treatments and potentially a cure. At its heart, this book is about more than just cutting-edge research or a race to find an answer – it’s about the lengths to which a parent will go to save their child’s life.